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[1]周芬潘菊美王晓琳何梦雪米蔷曹庆张峻玮杨科佳沈南平.上海市儿童安宁疗护协同转介服务模式构建[J].中国卫生质量管理,2025,32(08):54-59.[doi:10.13912/j.cnki.chqm.2025.32.8.12]
　ZHOU Fen,PAN Jumei,WANG Xiaolin.Construction of a Collaborative Referral Service Model for Pediatric Palliative Care in Shanghai[J].Chinese Health Quality Management,2025,32(08):54-59.[doi:10.13912/j.cnki.chqm.2025.32.8.12]

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上海市儿童安宁疗护协同转介服务模式构建

《中国卫生质量管理》[ISSN:1006-7515/CN:CN 61-1283/R] 卷: 32 期数: 2025年08期页码: 54-59 栏目: 护理质量出版日期: 2025-08-15

Title:: Construction of a Collaborative Referral Service Model for Pediatric Palliative Care in Shanghai

作者:: 周芬潘菊美王晓琳何梦雪米蔷曹庆张峻玮杨科佳沈南平; 上海交通大学医学院附属上海儿童医学中心

Author(s):: ZHOU Fen; PAN Jumei; WANG Xiaolin; Shanghai Children’s Medical Center, Shanghai Jiao Tong University School of Medicine

关键词:: 安宁疗护; 儿童; 转介服务; 三级儿童专科医院; 社区卫生服务中心

Keywords:: Palliative Care; Children; Referral Services; Tertiary Pediatric Hospital; Community Health Service Center

分类号:: R47

DOI:: 10.13912/j.cnki.chqm.2025.32.8.12

文献标志码:: A

摘要:: 目的构建适用于上海市的儿童安宁疗护协同转介服务模式，为儿童安宁疗护整合式发展提供参考。方法通过政策分析、半结构访谈，拟订“上海市儿童安宁疗护协同转介服务模式”初稿；采用德尔菲法进行两轮专家函询，确定上海市儿童安宁疗护协同转介服务模式。结果两轮函询问卷有效回收率均为100%，权威系数为0.857，肯德尔协调系数为0.183~0.275（P<0.01）。上海市儿童安宁疗护协同转介服务模式包括服务流程与内容、转介支持两个模块，包含12个一级条目30个二级条目。结论上海市儿童安宁疗护协同转介服务模式具有一定科学性和可靠性，可助力上海市儿童安宁疗护协同转介服务发展。

Abstract:: ObjectiveTo construct a collaborative referral service model for pediatric palliative care applicable to Shanghai, providing a reference for the integrated development of pediatric palliative care.MethodsA preliminary draft of "the collaborative referral service model for pediatric palliative care in Shanghai" was initially formulated through policy analysis and semi-structured interviews. Two rounds of expert consultations using the Delphi method were conducted to finalize the model. ResultsThe effective response rates for both rounds of the expert consultation questionnaires were 100%, with an authority coefficient of 0.857 and Kendall’s coefficient of concordance ranging from 0.183 to 0.275 (P<0.01). The collaborative referral service model for pediatric palliative care in Shanghai comprises two modules: service processes and content, and referral support, which are further subdivided into 12 primary items and 30 secondary items.Conclusion The collaborative referral service model for pediatric palliative care in Shanghai demonstrates a certain degree of scientificity and reliability, and can be utilized to promote the development of pediatric palliative care services in Shanghai.

参考文献/References:

［1］国家卫生计生委办公厅.关于印发安宁疗护实践指南(试行)的通知:国卫医发〔2017〕5号［EB/OL］.(2017-02-09)［2024-08-16］. http://www.nhc.gov.cn/yzyg j/s3593/201702/83797c0261a94781b1 58db d76666b717.shtml. ［2］PELANT D, MCCAFFREY T, BECKEL J. Development and implementation of a pediatric palliative care program［J］.J Pediatr Nurs,2012,27(4):394-401.［3］World Health Organization.Palliative care［EB/OL］.(2020-08-05)［2024-08-16］. https://www.who.int/news-room/fact-sheets/detail/palliative-care.［4］上海市安宁疗护服务管理中心.上海市安宁疗护发展蓝皮书(2012-2022)［M］.上海:上海科学技术出版社,2023:2-12.［5］吴玉苗,李水静,杨超,等.上海市安宁疗护服务提供现况调查分析［J］.上海医药,2022,43(8):11-13,18.［6］上海市安宁疗护服务管理中心.上海市安宁疗护发展蓝皮书(2012-2022)［M］.上海:上海科学技术出版社,2023:121-126.［7］LU Q,XIANG ST,LIN KY,et al.Estimation of pediatric end-of-life palliative care needs in China: a secondary analysis of mortality data from the 2017 national mortality surveillance system［J］.J Pain Symptom Manag，2020,59(6):e5-e8.［8］ABEL J, KELLEHEAR A, KARAPLIAGOU A.Palliative care-the new essentials［J］.Ann Palliat Med,2018,7(2):S3-S14.［9］JAVANPARAST S,ANAF J,TIEMAN J.Equity consideration in palliative care policies,programs, and evaluation: an analysis of selected federal and South Australian documents［J］.BMC Palliat Care,2022,21(1):109.［10］HOWARD M,PFAFF K,SATTLER D,et al.Achieving holistic, quality-of-life focused care:description of a Compassion Care Community initiative in Canada［J］.Health Promot Int,2022,37(3):daac067.［11］傅丽丽,张灵慧,汪庭娟,等.儿童安宁疗护服务路径整合实践探讨:以复旦大学附属儿科医院为例［J］.医学与哲学,2021,42(19):55-59.［12］张娜,朱丽辉,罗听薇,等.儿童安宁疗护应用研究进展［J］.护理学报,2022,29(4):12-16.［13］龚秀全,白海宁.上海市安宁疗护政策扩散研究:基于56份安宁疗护政策的文本分析［J］.中国卫生政策研究,2022,15(7):30-37.［14］黄晨熹.全面推广安宁疗护的文化与政策考量［J］.人民论坛,2024(6):56-61.［15］Worldwide Hospice Palliative Care Alliance. Global atlas of palliative care, 2 nd ed［EB/OL］.(2020-10-07)［2025-02-16］.http://www.thewhpca.org/resources/global-atlas-on-end-of-life-care.［16］HU KJ,SUN ZZ,RUI YJ, et al.Shortage of paediatricians in China［J］.Lancet,2014,383(9921): 954.［17］郭艳汝,任晓娟,袁媛,等.安宁疗护五级照护路径探索与实践:以沧州市人民医院安宁疗护病房临床实践为例［J］.医学与哲学,2022,43(14):21-26.［18］杨轶,王友青,秦苑,等. 基于购买力平价指数的安宁疗护服务收费标准研究［J］. 中国卫生质量管理,2023,30(10):51-55.［19］涂炯,梅笑.从嵌入到互构：中国安宁疗护本土化发展的挑战与机遇［J］.广东社会科学,2024(2):181-198,288.［20］吴颖,王晓琳,刘兵,等.分级诊疗视角下区域安宁疗护服务体系的探索与实践［J］.医学研究与教育,2021,38(3):50-55.

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更新日期/Last Update: 2025-08-15